Only your real friends will tell you when your face is dirty. ~Sicilian Proverb
As the resident artist on the research team, my job was to visualize in some manner the research of Dr. Amar Dhand and make it more accessible to the general public. After a number of open studio visits, it became apparent that the public wanted to see the art be encoded with the actual data. They wanted it to be a literal translation. I was stumped. I was side-tracked by the pretty diagrams Dr. Dhand produced with R, but I also found them visually messy and not telling the whole story over time. And so my research began in data visualization. I poured through twitter posts, websites and such. My visual parameters where that I wanted to stay with a round format as the circle is a symbol of wholeness and the universe and I really wanted to tell the story of the patient's network over time. It was also key that the patient remain in the center which evidently is counter to how most social network diagrams are constructed. As a stroke survivor, it was important to me that the patient be at the center, especially as the research is to hopefully create an intervention that will help the patient.
If you love data visualization, then Manuel Lima's fabulous book Visual Complexity: Mapping Patterns of Complexity is a must read. After reading his introduction into how family trees are the earliest form of data visualization and how that could also be shown as a tree ring I knew I had found the solution to my problem. But while I could make my art, was there any code out there that the doctor could run his data through? It seemed to me that the two must work together. This led me to a paper out of the University College of Dublin and the University of St. Andrews. They wrote code that was less node linked driven and allowed for the dimension of time.
I knew from many crochet experiments that I could create a tree ring diagram.
The patient is the red at center. Time is represented by a color family. I used a value scale of green in this example. The contrasting, complementary color of pink represents the nodes. I don't differentiate between strong and weak links as I wasn't given that data. It could easily be done, but is not present in this example. The first ring is the network upon arrival at the hospital. The second ring is the network at 3 months and the final ring is at 6 months. You can see how the networks make a shift over time. Working the data in textiles allows for certain advantages not available on a computer. I can shift the read with color and physical textures. Several diagrams I crocheted, the nodes are worked in a bobble stitch, so a person who is visually impaired may 'read' the data.
The backdrop reminded me of the blue of the sea. A net is used to fish and a form of net is being used to collect the data. This particular shade of blue is also the chosen color used in the Come Back Strong campaign of the American Stroke Association. And of course the ultimate goal of the research is to help the patient come back strong.
As it takes a network of support to aid the patient in their healing process, I've come to depend on my creative network to see the full completion of this body of work. It makes me nutty that the leading cause of death in the United States is heart disease and that the leading cause of adult disability are strokes and yet there is so little public awareness of it. Every October, the United States is awash in pink. This attention on Breast Cancer has lead to many women's lives being saved. They are getting mammograms which leads to early detection and greater survival. We need to see the same media blitz on heart disease and strokes. By the time I completed the panel of diagrams and several hundred mandalas, my hands were sore, yet I am aiming for 1,600 mandalas to represent the 1,600 stroke patients admitted to Barnes-Jewish Hospital in 2014. It's a drop in the bucket of the total 795,000 stroke patients in 2014. 1,600 seems small in comparison to 795,000. but that is a whole bunch of crocheting. Crocheters (knitters too) around the globe are making mandala contributions. I don't know if I will make my goal, but then again when I had my stroke I didn't know in what way my social network would assist me. I don't try to control this part, I just share my story and hope that I can make my goal. So far I've collected nearly 300 donated mandalas, mostly from a volunteer at BJC in the Arts and Healthcare department by the name of Yvonne. Katherine Hull has crocheted two of the sure to be three blue panels which totals 10x10 feet of filet crochet. That is a ton of crochet and took weeks to complete. I'm even finding that yarn companies are helping out. Lion Brand Yarns contribute the blue yarn. So many different hands are involved in the making as they were involved in my healing.